.:: September 2009 - 39th Annual General Meeting EAMDA (European Alliance of Neuromuscular Disorders Associations)

Session I: The molecular and genetic basis of neuromuscular diseases; Session II: Ongoing research and clinical trials; Session III: Treatment of neuromuscular disorders: 2009; Session IV: Ethical and Psychological challenges; Session: Independent living of persons with neuromuscular diseases – experience and practices in the Serbia and other EU countries.
A TREAT-NMD Training Course "Hot topics in muscular dystrophies and SMA - preparing for clinical trials" will take place on 17th September 2009.

17-20 September, 2009

Belgrade, Serbia

More information : http://www.eamda.net/

.:: October 2009 - EPPOSI: 10th Workshop on Partnering for Rare Disease Therapy Development

The topic of this year’s workshop of the European Platform for Patients’ Organisations, Science and Industry is “10 years after the adoption of the EU Orphan Medicines Regulation: Where do we go?" Three key themes will be addressed: What is the impact of the economic crisis on the field of rare diseases – and what is the vision on further progress in R&D, diagnosis and patient care? Building on the public policy base of the last 10 years: how to advance policies in the next five years? Rare cancers: specific challenges within rare diseases.

October 26- October 27, 2009

Brussels, Belgium

More information : http://www.epposi.org/web/Home/Home.aspx

:: November 2009 - TREAT-NMD/NIH International Conference

The aim of the conference is to share progress in the area of translational medicine in inherited neuromuscular diseases and set the future collaborative agenda. Sessions will focuss on: target and candidate identification; animal model assessment; developing novel, disease-targeted therapies and addressing the challenges of systemic delivery; what have we learnt from registry development?; clinical outcome measures; long-term treatment and combination therapeutics/learning from completed proof of principle trials; making clinical trials in neuromuscular disease a reality; therapeutic misconceptions and ethical considerations.

November 17- November 19, 2009

Brussels, Belgium

More information : http://www.treat-nmdconference2009.eu/