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.:: Ethical guidelines endorsed by the EuroBioBank Network

The EuroBioBank Network and its Members fully endorse the recommendations issued by the Oviedo Agreement 2 and the OECD Task Force on BRCs, in accordance with the applicable national and European laws and regulations.

The Members further undertake to comply with the following good practices:

1. Sample collection: respect of non-patrimoniality;

2. Respect of the patient's autonomy through the Informed Consent, for collection and use of the biological material for research;

3. Access to samples: ad-hoc board approval of the projects for which the biological samples are requested, no distribution of samples for cloning projects, respect of the Oviedo Convention on Human Rights and Biomedicine and Additional Protocols, 4th April 1997; and International declaration on human genetic information, UNESCO general conference, 32nd session, Paris October 8th 2003.

4. Confidentiality of the data;

5. Information to the patients on the use of collections and the outcomes of the research
project(s).

 

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