The EuroBioBank network is the first operating network of biobanks in Europe providing human DNA, cell and tissue samples as a service to the scientific community conducting research on rare diseases. It is the only network dedicated to rare disease research in Europe.
• About 130,000 samples are available across the network and can be requested via the online catalogue. Approximately 13,000 samples are collected each year and 7,000 samples distributed in Europe and beyond. The biological samples are obtained from patients affected by rare diseases, including rare neuromuscular disorders.
• The EuroBioBank Network is currently composed of 25 members, of which 21 biobanks from 9 European countries (France, Germany, Hungary, Italy, Malta, Slovenia, Spain, United-Kingdom and Turkey) as well as Israel and Canada.
• EuroBioBank is coordinated by FONDAZIONE TELETHON (Italy) for the administrative activities, under the responsibility of Mary Wang and Lucia Monaco.
Dr Marina Mora (Besta Inst., IT) has been coordinating the scientific activities of the network since 2013.
Funding and Collaboration
Originally funded by the EC between 2003-2006, the EuroBioBank received further EC support between 2007-2011 within the European Network of Excellence TREAT-NMD (FP6), which covered the cost sustained by Eurordis for the network coordination and website hosting. Each biobank of the network is financed by its own Institution or charitable organization. As of January 2012, the Fondazione Telethon provides the administrative support for coordinating the EuroBioBank network and hosting the website.
Moreover, BBMRI is an active collaborator of EuroBioBank.